WebJul 16, 2015 · GenomeConnect, ClinGen's patient portal, provides an environment where any individual who has had genetic testing or has a genetic disorder can participate. Participants can securely share genomic and health information and connect with clinicians, clinical laboratories, researchers, and other patients. WebGenomeConnect Learn More Contact Us Sign Up Login Contact Us If you have questions about your participation in the registry, please contact us: The Clinical Genome Resource (ClinGen) 120 Hamm Drive Lewisburg, PA 17837 [email protected] LEARN MORE Terms & Conditions Privacy Policy © Invitae Corporation. All rights reserved. …
Mayo Clinic Laboratories Genetics and Pharmacogenomics Catalog
WebClinVar archives and aggregates information about relationships among variation and human health. WebGenomeConnect allows bi-directional communication between GenomeConnect and various parties, as demonstrated in Figure 3. The GenomeConnect community provides a forum for those patients with an “orphan” syndrome or condition for which no disease-specific patient registry exists, brings these individuals together through matchmaking. organ trail free game
Recontacting registry participants with genetic updates …
WebJul 16, 2015 · GenomeConnect, the ClinGen online patient registry, was developed and launched in October 2014 to engage patients in data-sharing efforts (Kirkpatrick et al., … WebMay 18, 2024 · GenomeConnect, the NIH-funded Clinical Genome Resource (ClinGen) 16 patient registry, was launched in October 2014 as a mechanism for patients who have had genetic testing to contribute their ... WebHealthcare providers can inform patients about GenomeConnect, assist patients in registering for an account at genomeconnect.org, provide their patients with electronic versions of their test reports, and help them upload their test reports to their accounts. organ trail computer game free